search shop

Text size: A A A

You are here: Home > Blog

June 12, 2010

Cocktail party saavy

For 2 days this week I attended and interesting conference in Edinburgh for “Aspiring women CEOs and Entrepreneurs” which taught about women in business and “cocktail party saavy”!. What is that you may well ask? Really interesting and quite funny to hear about. Apparently it also works. We were given tips on where to stand during a cocktail party, how to introduce yourself, how to work out who is there and how to meet the big guy running the party without being intercepted. Other areas covered were how to chat to make yourself important and “interesting” enough for the big buy running the party to want to meet up with you again after or perhaps hire you for his big new job…all very intriguing and quite funny in parts. The trainers from the US MIT Sloan School of Management that took the course were very approachable and helpful. The best bit for me though were the fantastic number of women at the course all either running their own businesses or head of departments or CEOs from major European companies. We all got on really well and will hopefully keep in touch and meet again at future courses. Well done to Entrepreneurship Ventures who were running the course.
Ann-Maree

What labels are cool for – uni students, festivals and all!

I knew absolutely nothing about labels until I began working for Labels4Kids Ltd. I think that name labels are a fantastic idea for kids but that Ann-Maree’s products stretch a lot further than this particular age range.
I’m worked previously as a camp councillor and have been a ‘camper’ myself. Vinyl labels are a god send, lunch boxes, torches, canteens and umbrellas. These things are normally valuable and can’t really be easily replaced in the weeks of camp. Therefore, the vinyl labels help to indicate which Hannah Montana lunch box belongs to which 8 year old girl! Woven sew on labels, press and click name tags and stikins stick on clothing labels also work well at camp to identify those pesky items of clothing. If you have 14 kids in a bunk and a sleep away camp, you need to know whose sock belongs to whom. Personalised bag tags also work really well at camp as they help to identify luggage. Sometimes councillor’s deal with putting luggage on a campers bunk as it helps to keep order. Personalised bag tags are colourful, easy to spot and make everyone’s life a lot easier. Personalised gym bags work well too, they carry things such as swim kit, sports kit, water bottles, camera’s or iPods for the older, moodier camper. I personally think that the more labelling the merrier when it comes to summer camp situations.
I don’t have kids but I can tell you what I know from working with them. When working with under 5’s I always wonder why they feel the need to kick off their shoes at the earliest opportunity. Sometimes however, it can be warranted if its sand or water play taking place. Here I think the shoe vinyl labels are really cool, shoes often become really scattered and shoe vinyl labels can help to maintain order. Even if it’s a younger child that can’t read their name in the shoe, they can often identify the colour and picture as their own. My personal favourites however are Right Foot Labels. The pictures match up and help kids to know which foot to put their shoes on. In a nursery or primary school setting, shoe vinyls are a god send.
I’m a 20 year old student at university and my different sizes of vinyl labels and bag tags have come in handy! I have a bag tag with a cow on it that says “Sophie’s Milk; Hands Off!!” It works a treat!! I also have small vinyl labels on my mugs, plates, folders, mobile phone, iPod etc. It helps when living in a communal kitchen to whose things are laying all over the place… usually mine!
My personalised gym bag has also come in handy for going to festivals over the summer with my mates but also going to the gym or swimming with friends. It’s an easy bag to just ‘chuck’ things in and go! Definitely what you need when you’re really busy and can’t be bothered with a big handbag over your shoulder!
My parents really enjoyed the little business cards on the website. I think that the cards are really fun too. I like that you can have quirky little messages on them and they’re good if you’ve just moved address or are a sociable mum in the playground.
Labels4Kids don’t really just cater to kids; I believe that they cater for all ages and everyone I know that’s encountered my Labels4Kids products have asked “That’s cool, where’d you get that?” Simple. Labels4Kids.
Sophie, labels4kids.

Why pets are fashionable and good for kids

Certain pets, such as dogs, have recently become fashionable in celebrity culture. I don’t really understand this, as I would never be able to use my lovable pooch, Molly, as a fashion accessory.
I have lived with animals all of my life and it wasn’t until university that I had to live without animals… And the ducks and squirrels on campus were a bleak alternative. Growing up there were always about 2/3 cats and a dog in my household. As well as this I was surrounded by rabbits, hamsters, horses and the occasional goldfish. I loved having animals around me and as an only child, my pets were my brothers and sisters and I did form emotional bonds with these animals.
I believe that the advantages to having pets definitely outweigh the disadvantages. Of course certain animals, such as dogs take up more time and effort than the feline alternative however in certain ways their company can be more rewarding. Dogs are hard to train; my family are currently attending “puppy classes” to train my pup to walk properly on a leash, go to the bathroom at the correct time in the correct place and sit, heel, paw etc. A lot of effort goes into having the perfect canine companion however I feel that it’s totally worth it. The first time I heard her bark, saw her “sit and give a paw” or manage to jump up into the car, I felt like a proud parent. I was positively glowing!
Things like the way my family takes holidays have changed too, instead of exotic vacations, cabins in the forest or hotels that take dogs are the number one priority. But if you prefer Dubai to Dublin, there’s always kennels or that wonderful dog sitting company in the Yellow Pages.
Animals are expensive too, the initial costs being the cost of the animal, and then vaccinations, neutering, vets bills, toys, training classes, food etc. I think people don’t understand the true costs of having a healthy happy pet. However, there is pet insurance for those little surprises that pop up along the way!
You have to put a lot of effort into having a pet too, you have to play with it, exercise it, clean it and other things dependant on the type of animal. However I think that pets are definitely beneficial to households with children.
Pets teach children responsibility, whether it be feeding the cats or taking the dog for a walk, it can teach a child, time management, selflessness and it also could benefit the health and wellbeing of a child. For example, dogs require exercise such as walking or running, this benefits health of the walker too!
I think that pets are good as company too, if you need to talk to someone, pets are often a good outlet. I have, on several occasions, let my cats know how annoyed I am at a boyfriend or peer and my feline friend will just sit and purr as long as I provide her with enough attention.
There are pets that serve as just pets, but pets that also serve as “interests”; lizards, horses, tropical fish. All of these animals can be time consuming and can be hobbies as well as pets. These can distract children from other forms of entertainment such as x-boxes and computer games. I think that pets are a healthier alternative (hope you agree!)
Lastly, I know that Ann-Maree markets her labels to “Kids”. But Molly definitely looks cute with Bag Tags on her luggage for holidays and Vinyl’s on water bottle!
Sophie, labels4kids.

March 27, 2010

Behavioural issues of hidden dyslexia

Dyslexia is of interest to me at the moment as I believe one of our sons is showing some signs that perhaps he is struggling with his English for a reason instead of just being difficult or thinking he cannot do it! We have investigated hearing and speech which have been a problem but now his hearing is normal and so there may be other issues here. I went to hear a very inspiring talk by a lady called Moira Thomson the other day in Stirling at Dyslexia Scotland offices and I am grateful to Moira for agreeing on the night that I may repeat some of the information she relayed in this blog, particularly as her paper on “Supporting Dyslexia Pupils in the Secondary Curriculum”, which covers some of the points below, is still in pre-publication version. The information, however covers both Primary and Secondary.

Moira recently retired as Principal Teacher of Support for Learning at Broughton High School, Edinburgh, after 30+ years in that position. She has also been Development Officer for City of Edinburgh Department of Children and Families, in-house continued professional development provider for City of Edinburgh and much more. She is also an independent adjudicator for the Scottish Executive’s Additional Support for Learning dispute resolutions arrangements, an educational consultant and secretary of the Scottish Parliament’s Cross Party Group on Dyslexia, and I could go on and on about her other numerous and relevant roles.

Many of the medical and educational professions used to consider DYSLEXIA as something that did not exist but was created by middle to upper class parents whose children were struggling at school in order to explain their misbehaviour! Unbelievable as it may seem some still think that. However Moira believes that dyslexia is often only detected BECAUSE of behavioural issues. A child that has been very clever or bright in Nursery does not suddenly become “un-bright” or mis-behave without good reason. Teachers sometimes put this down to “problems at home” but as Moira points out how can they accuse parents of that when they don’t know about the home situation, they are not playing up at home, they are playing up at school so obviously the problem is at school. The behavioural issues can show up in Primary school as lack of concentration, writing difficulties, problems remembering things, motor control problems, reading difficulties, spelling difficulties or listening difficulties. These can be seen by teachers or even parents as laziness, lack of interest or lack of effort, insolence, poor attitude, boredom or weak concentration. Normally this results in any or a combination of feined illness, sore stomachs, days off, chit chat instead of working, fidgeting, distraction techniques, stubborness or dreaming.

If not detected at Primary level however, the sad part is that by Secondary this can show up instead as self harming, particularly annorexia and cutting (slitting their wrists) by girls, truancy, bad behaviour or distracting teachers and pupils in class and in extreme cases even suicide or mental health issues. Unbelievably also only 50% of dyslexics are discovered during their primary school years and one reason for this is that the style of primary teaching suits dyslexics being multi-sensory and presenting information in a variety of ways with one or only a couple of teachers.

Moira mentioned how some schools say they have dyslexia solved as anyone with Dyslexia in Secondary school gets an extra 15 minutes in exams. She says this is absolutely wrong. Each case is different. Each person has a “specific learning difficulty” and they differ widely although there re some trends. Some need longer time, some do not, some need a sribe, some need a laptop instead of handwriting, some only have problems with English, some with Maths. There is also no slightly dyslexic or severely dyslexic as you either ARE or you ARE NOT. The serverity of it is irrelevant in a way as you still need specific help to address your issues and help you learn.

On a brighter note, many of the world’s most famous people are dyslexic. For example, Sir Jacki Stewart, Sir Steven Redgrave, Albert Einstein, Winston Churchill, and tonnes of ex-US presidents! It does not mean you are “thick”. It means you learn in a different way and your brain is wired in a different way. That’s all!

So, how do you know if your child or one of your pupils has dyslexia? There are some telling signs like the behavioural issues that did not show up previously. If these have been ongoing for some time, then things like avoiding English. Spelling, reading, writing are often a problem for dyslexics to learn. Often colour overlays over text can help as on a white page the text jumps and merges and blurs to become illegible to some.

Dyslexics can have any or all of the following difficulties:
- auditory and / or visual processing of language based information
- phonological awareness and oral language skills
- short term and working memory
- sequencing
- number skills
- organisational ability
- motor skills / co-ordination.

Dyslexia may be hidden but show by:
- lack of fluent reading
- inefficient search skills
- inability to take notes
- inconsistent spelling
- weak short term memory
- weak concentration
- inability to copy notes
- inability to take notes
- illegible writing
- poor self image

It can sometimes take a while to pick up the signs and this is because children are very good at using coping strategies. Very quickly they learn to take their time to take out their book and turn to page 12 so that they don’t need to ask the teacher but instead just check what page their neighbour has their book open at! They forget work, feign illness, ask peers for help, talk more, or keep a messy desk all to cope with their inability to do something.

Furthermore, early development problems in children can prevent early identification of dyslexia. These include:
- glue ear
- delayed speech
- asthma which is often but not always linked
- visual / perceptual problems
- motor difficulties
- binocular instability
- developmental co-ordination disorder.

And, dyslexia can be mistaken for visual or hearing impairment instead. It can also occur in children that also have other issues like sensory impairment, Dyspraxia, ADHD, or physical difficulties. It would be good to eliminate hearing and speech with assessments for these too if they are at all in doubt. Myself, we have done that already with our son but he still struggles with learning to blend words and reading and writing at the age of 7.

By secondary level the child’s support group of friends can often be largely dismantled, there are a large number of subjects sometimes all with different teachers and a large number of books and homework to take home if not completed in class. All this makes working more difficult for dyslexic children and makes their work load much more than other children and they are more likely to fall behind or go “off the rails” with frustration if not detected and assisted in the correct manner. Being so many different teachers for such a short period of time a week also makes detection of dyslexia difficult at secondary level.

There are a number of TRIGGERS for behavioural problems in the class if a child does have dyslexia. These things make a child behave badly or show the effects discussed before as they are difficult for the child:
- asking them to read aloud in class
- requiring them to work alone instead of in their support group they normally work with
- silent reading
- copying notes
- insistence on verbal answers
- extended periods of listening
- dictation
- locating information in a dense amount of text
- writing at length
- time limits on tasks.

Some of the parents present at the meeting with Moira Thomson have had their children diagnosed as dyslexic but are having major problems with their child at home in coping with school homework. Some were being forced to translate text into Scots tongue and to do copious amounts of homework on English and grammar which their children were struggling with. One couple were at their wits end with a 9 year old who now says he “hates” them and fights his way through his nightly homework, some of which the parents cannot even do as they don’t know what has pre-empted it in class that day ie what story was read that day and had to have a report written up about it at night. He has also at 9 threatened to kill himself! Moira’s advice to these parents was to write to the Head teacher and copy that to the department of education saying that their child is dyslexic and has a RIGHT to refuse to do that work as it is inappropriate for his educational needs. I count myself lucky that we are not in that extreme type of situation and my child’s school is succeeding in progressing his education slowly but surely with adequate extra special education geared to his needs. Many it seems are not getting the required help in the education system.

Dyslexia is “a hereditary, life-long, neuro-developmental condition” according to Moira Thomson and as a result if unidentified and treated can result in low self esteem, high stress, atypical behaviour and low achievement.

Early identification ideally by an assessment by a qualified Educational Psychologist is vital to give appropriate intervention methods and targeted effective teaching to the child concerned.

These books and programs can be found via the internet and are great helps for dyslexic children to use in primary school:
Brain Booster
Nessie
Word Shark
Number Shark
Toe by Toe
Bare essentials.

I hope that you find this information as interesting as I did and if you think your child may be dyslexic, take Moira’s advice and get and early assessement. I have booked mine with Dyslexia Scotland and they can line up an Educational Psychologist for you to assess your child for a fee. There will be a Dyslexia Association in your own area located via your local government office.

Ann-Maree with thanks to Moira Thomson for her information and guidance and Dyslexia Scotland.

March 23, 2010

Dyslexia – how I’m different to others

Sophie worked for Labels4kids last Summer in her University break and has a really interesting background. I have asked Sophie to do some blogs for labels4kids as some of her experience will be of real interest to our customers and this is her first instalment. I hope you find it interesting! Over to you Sophie…
****************************************************************************************
Could they have made the word ‘dyslexia’ any more difficult to spell? I really don’t think so.
I was diagnosed with Dyslexia or a ‘Specific Learning Disability’ when I was 18 years old. In my opinion, the late diagnosis has stunted my growth within academia.
Where to begin…. in nursery I was described as “colourful”. Nursery teachers would often want to speak to my Mum at the end of the day to explain that I wasn’t doing activities in the correct manner. I was unable to follow instructions given to me. This wasn’t that I was being bad or trying to be obtuse, I simply didn’t understand. My brain didn’t understand their linear ways of explaining tasks to me. My dyslexia adds to my sometimes “scatty” personality, I can’t help it; it’s just the way I am.
My years through primary school weren’t easy, being a head and shoulders taller than the rest of my class and having curly hair, I was an easy target for bullies! I can still hear the taunts; however, if you are a parent, I’m sure the following will leave you rather pensive….
I was being bullied by other children, but on top of that it felt as if I was being bullied by certain members of staff. They would scold me for messiness and the inability to spell, which to me was just the way in which I went about my work. One day, I was writing a story in my workbook and my teacher asked me to start again because my writing was so messy, she then asked me to start again, and again. Eventually, I had become so frustrated and upset that I couldn’t do better (I was 8). I just gave up and said I couldn’t do better. She said “fine, just continue”. Once I had finished my work, my teacher took me through to the class of 11 year olds’ next door and stood me at the front of the class. She asked the older children if they thought my work was appropriately presented, or if they thought I could do better. Whilst shaking and crying, she stood me in front of the class and scolded me.
My mum, an incredible woman, went to the school to talk to the head teacher. I recently learnt that she left the meeting in tears and feeling sick. The head teacher had tried to defend her member of staff… not a chance! My mum simply reminded her that the teacher had gone against several of the UN Rights of the Child. For instance, so feel safe and protected, to be heard and to be treated fairly. I will remember this incident for ever, it’s shaped who I want to become, a person who understands that children have a voice.
My mum has asked at primary and secondary school for me to be tested for dyslexia but teachers always just said I was “capable” but that I needed to apply myself. I struggled with the reading and the tasks that I was asked to perform. Some things just simply didn’t register in my brain. I always managed to get by with the help of certain teachers that let me do things “my way”, for instance using mind maps instead of linear plans. However, as I moved through school things just became more difficult and confusing.
When I reached university, I took a class called “learning strategies”. In my first workshop with a tutor, she suggested that I go to be tested for Dyslexia. 6 weeks later I was diagnosed. Finally! It had taken 14 years in the education system for an educator to see the whole picture, someone that had only known me an hour!
My dyslexia relates specifically to my working memory, perceptual organisation and my processing speed. This means that my arithmetic, letter-number sequencing, matrix reasoning and visual comprehension all work in a slightly different way from the ‘normal’. This makes things like reading, following instructions and organising myself really difficult. However, support at university has made things easier.
I now sit my exams on a computer or have someone to type it up for me, I sit and just chat to the person, and they write down my thoughts, then I can piece together the essay I want to submit. I also get to have books from the library for longer, and I am given yellow bits of cellophane to cover words on my book, which makes the words easier to read and understand.
Since receiving this help, my grades have improved and so has my outlook on life. I now understand why I do things the way I do. It’s ok to make a mind map, have arrows and stars all over notes and talk in an exam room.
Living with dyslexia isn’t a curse; it’s just a different way of looking at the world.
By
Sophie

February 9, 2010

Gluten/dairy free, ulcers, clinical nutricianists etc

Ages back I gave an update on my son’s health problems having a duodenal ulcer which no one can seem to cure. Well 4 years on from all this having started I thought I should give those who are interested an update. Well, we have done it all:
the dairy free diet,
the wheat free diet,
the blood type diet,
omeprozole for cutting acid from the stomach,
triple drug treatment for helicobacter which has never been found in his system anyway,
steroids,
and now immune suppressive treatment.
So we can’t get much more extreme really for a 12 year old.
He is now (just the last couple of weeks really) keeping much better. We go through stages where he deteriorates though and are not really sure why this ucler keeps recurring. The consultant at Great Ormond Street, where we went for a 2nd opinion before starting immune suppression, did indicate dairy and wheat and perhaps pollen as being the main causes or if not causes then definitely major contributors to internal problems for most people and pin pointed on the day we were there that he had “allergic shiners” or grey bags under the eyes indicating dairy allergy. So as a family anyway that is what we are concentrating on now.
Still under Yorkhill 4 years on we have tried dairy free and wheat free on their own and although his continually blocked up sinuses were much improved on dairy free there was no internal indication of any improvement to the ulcers. The blood type diet we found too extreme for a child as being fussier eaters anyway there was just so much that he couldn’t eat. For an o-type blood: no potato, corn, bread, dairy, but more and more and more that was off the list. The ones on the list were things he hates like fish for example. Just too hard and no follow up help was given.
Now on immune suppression this is really extreme but on a high dose is helping. Or seems to be. In December though I was chatting to one of our GPs who had came across a case of another child who turned out to be allergic to the additives like benzoalate that is in tomatoe sauce and also to tomotoes and this was picked up from a blood test. After taking the child off tomatoes he eventually came off his immune suppressive drugs too and is now healthy. She suggested we get a blood test done to check that and could also recheck wheat and dairy. We had been told all the allergy tests for wheat and dairy and other things had been done and had been negative. However late December results came back showing high intolerance to dairy and a moderate intolerance to wheat. Tomatoe seemed ok. That just added weight to the theory of the consultant at Great Ormond Street that dairy and wheat are problems. In our mind, regardless of whether they are causing the ulcer problem at the very least he must be intolerant to these and going off them in the main must be beneficial. The GP agrees. We have decided to try taking most of us off as much dairy and wheat as we can and strangely certain things have improved for the whole family:
we are losing weight
we are no longer feeling bloated and lethargic
everyone is regular!
the son with the ulcer has had no stomach pain at all
and has not been woken in the night with pain.
There is so much wheat especially in everything we eat that it is very hard to be coeliac and cut wheat completely. Especially for a child used to eating it. However there is so much available on the market now to be able to swap over and reduce the intake that it isn’t impossible. More restaurants too are adding gluten free diets at least. Dairy free is a little tricky. Basically plain cooking with meat and vegetables and no added extra sauces is easy enough, though a little boring.
After chatting to the favourite local Italian restaurant they were nice enough even to make dairy free gelati for us and have introduced a home made gluten free pasta so we can still visit but just no milkshakes.
Also we tried out a clinical nutricianist who has agreed in general that the wheat and dairy will be a problem but also indicated that because of the ulcer ALL FOOD will be a problem anyway as it will go into the blood because of the hole in his gut. She has not removed any consultant tablets but added in vitamins and minerals to help “balance his system” so we will see what happens. I am sceptical but she has had excellent results for various problems with a whole range of people so is worth a try. Anything is really.
Fingers crossed that we can eventually come off immune suppression with dietary changes but we are all using guess work and gut feel I suppose so will have to just watch this space.

Hormones – who needs them

Filed under: General Chit-Chat — Tags: , , , , , — Ann-Maree @ 12:10 pm

Hormones! Something to be said for those. The office here had a miraculous clean out last week. The girls asked if I was pregnant as everyone was having to jump and get things moved about. And for the better I might add. “Of course not, do you think I’m mad? Another baby!” but then I had the comment from Sarah “OK, well you’re definitely nesting then!” What’s that for goodness sake? Sitting on an egg? No way! Yet… 2 days later on entering the office I had to admit “OK you were right. It’s that time of month again!”….How do other women know these things? How weird that we DEFINITELY DO NEST. Always heard about these things but never realised until after having kids that actually it happens every single month and gets worse every year, not better. I thought it was just when you were pregnant, but oh, no, it’s definitely more often than that. A sparkling clean office and a sparkling clean house. Even better is….no one but me can find a damned thing!

Pets Pets Pets – for presents or for life!

Tommy, Rex and Robbie bunnies

Tommy, Rex and Robbie bunnies


We have 3 bunnies, 2 hamsters, a pile of wild squirrels and tonnes of wild rabbits and birds, and 3 wild boys…and yet, we apparently don’t have enough! The kids looked after their rabbits with mum’s help for the first 2 years I guess and for the last 3 mum has been religiously feeding and cleaning out when they forget. There IS a rota of who does what day but of course boys being boys…too busy, forgot, too much homework, been to tennis, too cold, too dark…etc etc.
Well enough is enough. I did a bit of research and healthy bunnnies can last to 8 or even 12 in rare cases!!!! Ahhh! Every time I go to the vet I am told how healthy and well looked after our rabbits are. Oh dear! As much as I love these bunnies they are going to have to go. I have just booked them in for their annual injections (ÂŁ90 in all for all 3) and then they can go to a good home where they will get a lot more loving attention.
I really think their life isn’t that great if they are not getting hugged and petted so much so I want them to go to a good home. The oldest is all teary as they are his pets and he doesn’t want them to go. Appears now, NOW, he wants to be a vet and promises to look after them every night – well you know that won’t last will it! The second one is quite blazĂ© and happy for them to go to a good home. The 3rd child wants them to stay but of course is too busy to feed them tonight, or has just taken his shoes off, or….here we go again!
And the hamsters (or rats as dad calls them)? Well, they are also looked after by mum I guess in reality. The kids feed them and if they are awake at night before the kids go to bed then the kids will put them in their ball for a roll around the house. A bit like G-Force the movie at times in our house. They do more for them than they do for their rabbits which I think is more to do with them being in the house and not down the garden in the cold but at the end of the day I guess after 2 years “bye bye hamsters”.
And now for the next thing. Birthday coming up and the 12 year old wants a “bearded dragon” or a “uromastyx”. A WHAT? Can’t even spell it! For the uneducated, like me, it’s a reptile. A lizard. Since he is going to be a vet he wants to try out lizards next. BUT only one that takes vegetables and so the beardie is out. And mum, of dear, generally gives in, except not on the cat and dog due to asthma! So hear we go again. I guess I’m a softie at heart but I’m running out of steam looking after so many pets – human and non-human might I add!
What about you? Tell us your pet dramas!

January 11, 2010

Tennis coaching with a difference

Coach-wirh-Scott-&-RobertDec09

We just returned from Los Gigantes in Tenerife over Christmas where we had a great time with Tennis Coaching in the sun with an amazing coach called John Debnam ( www.tenniszoo.com ). John has a great personality and is able to get the best out of the kids and the adults. Our 7 year old has been totally uninterested in tennis and can never get a ball over the net. In a 15 minute trial session he had him hitting every ball over the net and interested in the sport too!

We found John’s site just searching google but it is an amazing site too. Tonnes of tips on techniques and latest tennis world news. It even has our family photo on it now – embarrasing yes, but hey, at least I’m out there having a go!

I would highly recommend anyone looking for some private coaching and visiting Los Gigantes to look up John’s site and get in touch. He is great with technique tips and can tell you all about USA’s Boliterie Academy tips as well. He teaches from a fabulous small local tennis club with 3 courts which also holds Sunday tournaments for fun with whoever turns up and the restaurant/cafĂ© is UK ran and good too. What more could you need? A pool? Well the club even has that for a small charge.

“The girl who said No to a new heart” and how it made me feel

I watched an interesting show on tv the other night which was quite like the book “My Sister’s Keeper” in a lot of ways. It was on BBC1Scotland called “Hannah: The Girl Who Said No To A New Heart”. That an amazing and inspirational story of someone only 13 years old taking her life in her own hands and making her own decisions on whether to live or die.

Hannah refused a heart transplant knowing she could die and wished to stay well and not get worse and this not be the last Christmas in 2008! Her parents I think should be commended for the way they supported her choices without pushing her into major surgery until she was ready to do it herself. She had to want to live and their decisions could not sway her. Her mother said at that age that she could not physically make her go for a major op and undergo major surgery that could be life threatening and put her to sleep if she doesn’t want to do it!

I can relate to that having had a son aged 8 undergo major surgery and having gone through the past 4 years in and out of Yorkhill children’s hospital and at Great Ormond Street for a second opinion as well. He is now 12 and is very stubborn and difficult to get to the doctors for regular blood testing if he decides he doesn’t want it done. I mean, who would!

This girl had only half a day a week at school as she was too tired. Her heart was too weak. There was a lot of public debate apparently at the time this story first leaked out about whether she should throw her life away and because she may change her mind one day but it could have been too late. Can a child make that decision and can the world stand by and watch this? The parents and I agree with them I must say said ” It’s not our decision”. They felt people who criticised them had not lived in her or family’s shoes on a daily basis or indeed at all!

The local Health trust challenged the decision and took legal advice to remove her from parents which was eventually overruled by the judge after a social worker interviewed her and decided she was a strong character able to make up her own mind. She is determined she can get well herself. The family decided to go on leading a normal family life hoping to see if she changed her decision or not.

Eventually she had a second opinion from the specialist unit at Great Ormond Street hospital which confirmed that she had a very short life expectancy and was much deteriorated medically although she seemed well at home. She had leaking heart valves and the hospital asked her if she had changed her mind. This was 2 years later! She said she had been frightened of needles, not dying, and had had enough of being permanently in and out of hospital but eventually she changed her mind herself and gave the doctors the agreement to proceed with a heart transplant.

Due to the wrong size of heart being transplanted (the only one available in time was too big and her body had to get used to the size of the new heart) she had to have 12 days unconscious with her heart left open then the doctors shut her chest and she was revived! Amazing operation and such a brave girl and a brave family.

Having gone through a lot ourselves I am always amazed to hear stories like this. I know what a stroppy and emotional child can be like if they have been in and out of hospital. Our boy had that at the age of 8 and major surgery and it was hard going. He still is under treatment and takes a pile of medication daily. On the whole given weekly and now monthly bloodtesting he is a happy and normal teenager now but he occasionally has enough and thows a wobbler about not taking the tablets any more and not having any more blood taken. I would be the same myself and I can see why the doctors and the family supported Hannah’s decision.

I just wonder how many people could have done that themselves knowing that your child was highly likely to die if not treated in time. Even I would have found that hard. What are your views? Take part in our online forum questions on this topic. Register on our forum at http://www.labels4kids.com/blog/forum/

Older Posts »