Kate, a mum-of-two, was diagnosed coeliac three years ago. She spoke to Heidi Soholt about living a gluten-free life.
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What is coeliac disease?
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It’s an auto-immune disorder where your body reacts to gluten – a protein found in wheat, barley and rye. The body triggers antibodies to ‘fight’ the gluten as if it were a poison. Eventually the lining of the gut is affected, impairing the body’s ability to digest food properly.
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What were your symptoms?
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Many people suffer from bloating, wind, stomach pain, weight loss and headaches. Depression and fatigue have also been linked to undiagnosed coeliac disease. In my case the symptoms were fairly mild; tiredness, small weight loss and some hair loss.
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How were you diagnosed?
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I went to the doctor complaining of the above symptoms and was given blood tests. The coeliac test came back positive. I was then referred to hospital where I had an endoscopy. This involved having a tube inserted through my mouth into my stomach. The tube had a small camera attached to it in order to scan the lining of the intestine. This showed some damage to the intestine wall, a major symptom of coeliac disease.
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How did you feel when you were diagnosed?
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A bit shocked at first, but also relieved when I discovered that, by eliminating gluten from my diet, I could reverse any damage that had occurred to my gut. I was given a lot of support from my GP and hospital, and I also joined Coeliac UK, a support group.
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How difficult is it to stick to the diet?
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Initially it was tricky, as I didn’t realise quite how many foods contain gluten. Apart from the obvious ones, like bread, cakes and pasta, a lot of sauces and ready meals also contain wheat flour. I know that I accidentally ate gluten a few times in the beginning. I soon got used to it though.
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Coeliac UK publish a food directory which I have found very helpful. This lists all gluten free food available in the major supermarkets, by brand. It is invaluable particularly as, for example, some brands of cornflakes are gluten free, whereas others are not.
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I find it can be challenging to eat out. Some restaurants are very clued up when it comes to coeliacs but others are hopeless. Also, you can’t be one hundred percent sure that something is gluten-free when you are not preparing the food yourself – even experienced coeliacs like me make mistakes.
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My kids are not gluten-free and this can pose problems too. When preparing food at home I have to be careful not to ‘contaminate’ mine with, for example, bread crumbs. Also, I can’t really try my toddler’s food to check temperature – I have to stick my finger in instead.
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Any general advice?
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If you have any of the symptoms I listed above, go to your GP. A lot of people diagnosed with IBS have subsequently been found to be coeliac. It is not something that is routinely checked for, so you may have to request a blood test.
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There are masses of gluten-free products on the market so a diagnosis needn’t be the end of the world.
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If you are coeliac and have any more advice or tips then we’d love to hear from you. And, as always, don’t forget to have a look at the fabulous products on offer here on the Labels4kids website.








